@bizeemom

I'm really sorry that you have had this experience. Almost two years of PMR and still on 15 mg of Prednisone along with a flare in the interim that required 60 mg. I wouldn't be overly optimistic that PMR will stop abruptly after 2 years.

Being tired to the bones is probably an indication that you have secondary adrenal insufficiency which is another side effect from long term Prednisone use. Adrenal insufficiency will require an even slower taper after you get into single digit doses of Prednisone.

Losing your hair, thinning skin and insomnia are all side effects of prednisone that you have experienced --- there might be more the longer you take prednisone. All of the above is an amble reason for trying another approach. The AIP Diet might help but I would recommend having a serious conversation with your doctor about trying a biologic like Kevzara. It doesn't come with any guarantee that it works but it might be something to try.

I was on Prednisone for 12 years before a biologic was tried. I was able to taper off Prednisone completely in 1-2 years after the biologic was started. I'm still being treated with the biologic medication but I have been off prednisone for 5 years. My biggest regret was that a biologic wasn't tried sooner because it has worked better for me than Prednisone did. I don't have many side effects from the biologic medication I take but there are some potentially serious side effects. I haven't had any relapses except when the biologic was stopped. The biologic was easy to stop though. The couple of relapses I had only happened gradually and were not severe unlike the sudden and severe overnight relapses I experienced when I took prednisone.

Good luck with whatever you try going forward.