← Return to Mayo Clinic diagnosis of Gammaglobulin deficiency: Any tips?

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Profile picture for manahajpir @manahajpir

I have diagnosed with statin induced necrotizing myopathy since October 2025. My treatment started with 3 days in a row each month for Gamunex-c infusion. At home infusion, nurse will come and do it via IV. Mine is not subcutaneous.
Each day takes up to 4 hours of infusion.
Cost varies depending on insurance. It is expensive (some cases up to $10k) per treatment. I have paid my share of cost and some percentage of my insurance. BUT, I just figured out that, for my new medication, Rituximab, since my insurance denied it, we sent an application (from my drs office) to the non profit organization that approved the medication for me for free as long as no insurance or denied by insurance. They go through manufacturer’s. Check on that with your doctor’s as well. Good luck!

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Replies to "I have diagnosed with statin induced necrotizing myopathy since October 2025. My treatment started with 3..."

@manahajpir I’m sorry to hear that you have that particular ailment, and that you have to have infusions! It’s such a rigamarole to get financing for this extremely expensive treatment, and I’m worn out from all the hassles that I’ve been through, with 2 Insurance denials, etc. Finally, though. I got coverage, with the Medicare and Supplemental, so I’ve started with the infusions! Dealing with Medicare on several issues, where they have denied, has been downright nasty, for me! Very discouraging! I’m glad my Doctor and his Nurse Manager went to bat for me! Good luck to you, too!