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← Return to Brinsupri experience after 3+ months
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Brinsupri experience after 3+ months
MAC & Bronchiectasis | Last Active: 15 hours ago | Replies (210)Comment receiving replies
I am replying because of the dry skin and patches of red spots. I have only been on Brinsupri for 8 weeks, but this happened on my legs and arms out of nowhere. I did make an appointment with the dermatologist, and he was not concerned about the appearance of the spots, but it has drastically changed the way I feel about taking the medicine. I am on the 25mg dose and questioned my pulmonologist, and he is so for this medicine that the reply is that there is no other treatment. I get that, but people have lived with this before the pill. Just need to stay in contact with others trying this route and having the same side effects.
Replies to "I am replying because of the dry skin and patches of red spots. I have only..."
@kwalkerz consider trying the 10mg dose to see if there is less hyperkeratosis.
@kwalkerz I have the dryness/red areas on my hands. For me the trade off is 100% worth it! I love how I feel on Brinsupri!!!!
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@kwalkerz My pulmonologist (a Bronchiectasis expert) is conservative about recommending Brinsupri so far, and only tries it on those who have had 3 or more exacerbations in a year. She participated in the clinical trials, and is following the current reporting carefully, but is not certain every person needs to use it.
There is a lower, 10mg, dose. The last clinical trial showed it to be equally effective in preventing exacerbations. ( https://www.webmd.com/lung/brinsupri-bronchiectasisMaybe you can ask to switch to it?) Maybe you can aske your pulmonologist to try it?
So far, are you seeing any positive changes?