Living with Neuropathy - Welcome to the group

Hi @retiredteacher, I hope controlling your diabetes will help with your feet. I would think the blood sugars are effected by the foods consumed and the amount of exercise. Perhaps when the air temperature is warmer, a person is less likely to move around as much, thus the blood sugars will be higher. I also have a more difficult time when the weather is hotter. I do less as a result and have to take many breaks when doing things around the house. I do not have diabetes but I share the symptoms due to my AVM.

Hi my name is Catie. I have a vitamin B 12 deficiency and am now having peripheral neuropathy pain. My symptoms progressed very quickly in 1 week. I started with internal vibrations that have spread everywhere and now I have muscle weakness in my legs and burning pain in my feet and hands. It often hurts to wash my hands and put weight on my feet. I just started Gabapentin. Any tips on how to deal with the pain are greatly appreciated.
Thank you for the group!
Catie

Am about to try medical marijuana! Steve

Gabapentin did nothing but messed up my memory

I just started taking gabapentin. The doctor warned me that it could cause problems with my anxiety and depression and it did. After taking a low dose of 2 pills in a day I started feeling very anxious and angry. I started crying all the time. I could not stop. Now that the medication has worn off I am doing fine. No more gabapentin for me. I have friend who has taken it and no problems. Gabapentin has even been given as anti-anxiety meds, but though in some it works as an anxiety inducer. That is why it is important to listen to your doctor.

Welcome @wilcy
I've had neuropathy for a brief time. No one seems to know why it started. However, I am very lucky (so far) because I do not suffer from any pain. I don't know what the future holds, none of us do, but I will take things as they come.
I also take Gabapentin for a variety of other issues I have. I do not feel it helps me either. I was very interested in your comment about it impacting your memory! My memory SUCKS (pardon the French)! I've been thinking of coming off the Gabapentin, but each time I do, I have some sort of a flare up and the docs tell me to remain on. Guess I'll see
Sorry I can't help you regarding how to manage the pain, but there are many other wonderful people in the group who can give you suggestions.
Enjoy the remainder of the weekend!
Ronnie (GRANDMAr)

@johnhans

@johnhans
Good to know!!!!
Thanks!
Ronnie (GRANDMAr)

Hello Catie @cbnewpain -- Welcome to Connect. You mentioned you have vitamin B12 deficiency. Vitamin B12 deficiency can cause nerve damage and other symptoms.

Vitamin B12 deficiency can be sneaky, harmful
-- https://www.health.harvard.edu/blog/vitamin-b12-deficiency-can-be-sneaky-harmful-201301105780

Is your doctor trying to boost your B12 levels to help with the nerve pain? I only have numbness with my small fiber peripheral neuropathy so I'm hoping other members can share their experience and what helps with the pain.

I was put on Gabapentin for fibromyalgia and was later diagnosed also with peripheral neuropathy. I had serious swelling of feet, toes, ankle and leg with terrific pain. Was then diagnosed with lymphedema. I was referred to a neurologist who immediately took me off gabapentin because it can contribute to the swelling. She prescribed Topamax and I have been taking that for almost 2 months. I would like to note that the swelling and fluid retention did not in any way decrease when I stopped the gabapentin. However, I stay on the topamax because it does not cause weight gain and in fact I have lost some weight. Another plus I see is that I do not have that the feeling of bugs crawling and jerking around in my legs. I am sleeping fairly well. I don't know if anyone else has been prescribed Topamax , but so far I am not having any problems that I am aware of.