@dragonflylady
Glad to hear the iron infusion has helped. Like you I'm 69 and have had this my whole life with it getting worse as I age to the point it is now every single day/night. Unfortunately, I have an allergic reaction to all of the medications that I've tried including gabapentin and pregabalin. I can take tramadol, but that doesn't stop...just kind of makes it more manageable. I live in a state where CBD is legal, so I take CBD with very little THC, heat wrap on my back and tramadol around 5 or 6 pm as mine started late afternoon. Like you it also effects my arms some nights. That combo has been life changing. some nights it doesn't help, but its 100 times better than before. I've been to many doctors and neurologist over this but other than the meds that I have a reaction too they have not been much help as they just don't know that much about RLS. I did have one neurologist say that while all my iron, D, Mag etc were good there was a chance that my brain was not getting the notice that I had good iron levels or that I was taking extra iron. Guess that's a thing, but we moved so didn't see him again and have an appointment with a new neurologist so will see what they say. FYI I have been told that the medication can make RLS worse, so you do need to be careful. Kind of glad I cannot take the meds as I would hate to make this worse than it already is...I've worn holes in sheets, cannot sit still in meetings etc. I'm a nightmare to travel with....I wear support socks, heat wrap loose clothes, pay for more leg room or 1st class all trying to make a trip easier. Sometimes it's ok, but most of the time it's a horrible trip for me....I get up all the time to use the restroom just to move. LOL