Hi to everyone who is suffering or in the process of recovering I am also stumping the doctors. I have horrific pain in my left foot, ankle and leg. My foot toes and ankle are so swollen I cannot put shoes on. The severe swelling and pain and numbness began over 6 months ago. Actually the numbness and heaviness over a year ago. I was sure I had peripheral neuropathy but obviously doctor did not think so until nerve conduction test done in March proved it so. I have had one visit to a neurologist and she did blood work which included an ANA test to look for autoimmune disease. I see her tomorrow to go over the results. In the meantime I have seen 2 nerve specialists and have venus insufficiency. no clots and according to one I have lymphedema. I have not had cancer or cancer treatment. I went to lymphedema therapy for a month, hated it and found no relief from the pain or swelling. One vein doctor is ordering me the lymphedema pump and I am trying my best to wear compression stockings. The pain rates a 10 plus at times and pain doctor did prescribe percocet which helps briefly. I was also referred to an orthopedic surgeon to rule out whatever. I saw him today. Yes, he says my foot. toes ankle and leg are swollen, but he is stumped as to the severity of pain as he bent my foot and I pushed back in pain. I a sure this is not exactly what he said, but this is exactly what I heard from all so far. "Your old. You have alot of issues and they are hitting you hard. I can't explain it. Just eat worms and die" I now bring my young niece to appointments with me so she can tell what they really say and so far I am not off by much. I knew nothing of lymphedema until one doctor said I had it. When I returned for my 2nd appt I asked why no one was testing me for lymph node problems. He said I should be but obviously he was not the one to do that. My primary care physician has referred me for a CAT scan of lymph nodes on Friday June 21. Can anyone tell me if peripheral neuropathy can cause this pain and hurt all over my body and can lymphedema come about with damaged lymph nodes. My life has turned upside down and I don't know where to go from here.