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Anyone have chronic lymphocytic leukemia (CLL)?

Blood Cancers & Disorders | Last Active: Jun 22 7:21am | Replies (368)
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@loribmt
Good morning Lori-
My husband saw a hematologist yesterday. He thinks it’s CLL but Mantle Cell was also mentioned. We’re waiting on the results of the flow cytometry.

He was not worried at all but when I looked up Mantle Cell, it looks a lot worse than CLL. I read it’s very aggressive and affect life span more.

Is this routine in diagnosis, meaning, ruling out Mantle Cell? The dr wasn’t concerned about my husband and said don’t worry but I wanted to hear from you whether the ruling out is routine in CLL diagnosis.

I know you’re not a doctor but you have a wealth of information.

Thanks.

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Replies to "@loribmt Good morning Lori- My husband saw a hematologist yesterday. He thinks it’s CLL but Mantle..."
Lori, Volunteer Mentor | @loribmt | May 14 8:29am

Hi @rimmy2 Blood cancers and conditions can be complicated and not always easy to pinpoint with the subtle characteristics within a group. It can take some sleuthing with testing such as the flow cytometry your husband just had. To answer your question, yes! Flow cytometry is often part of routine testing to confirm CLL or any blood cancer really. It can help spot certain markers that are unique to a specific disease.

So try not to read too much into this. I know you’re on pins and needles while waiting for a confirmation. This is where I’m going to encourage you to not go trolling for information online because anything you’re looking at right now is mere speculation and really feeds into that anxiety pot! Right? ☺️

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