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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
You are not alone! There are many helpful people on here so you're in the right place! Sometimes it just feels good to chat with someone that is going through the same things you are. Here is my advice to you.
Your team of doctors will probably need to include a PCP that supports your issues and strives to find treatment for you, a pain management doctor, a neurologist, and a physical therapist. Integrative/holistic providers will do a world of wonders for you as well. You may also want to consider a mental health provider if your symptoms are causing depression or anxiety. Find a good physical therapist that is up to date on new procedures, and continues to take classes to learn more. The right one will help with the neuropathy & muscle pain. Also, maybe it's just time to look for a new doctor. Research them online and read their reviews. In my area I've found that the good ones are booked out a couple months but probably worth the wait. I'm currently looking for a neurologist. Ask all questions you have and don't settle for a doctor that ignores your concerns! You are your own best advocate! The more research you do, the more questions you ask, the more answers you'll get. Hang in there & take care!
Replies to "@cocodab You are not alone! There are many helpful people on here so you're in the..."
Thank you for this advice. You are so correct.
This will take some time I am on SS Medicare and I find many limitations.
You have to be your best advocate and one has very little energy.
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Hi cocodab:
There is almost nothing more powerful than experience. In fact there is a Scripture that says the educated are at the mercy of one who has experience! That was Not a quote! Doctors learn and remember from lessons and books and if you can find one who will listen you are most fortunate! From my experience to find help with Neuropathy issues & muscle pain, find a good pain doctor unless you have a good amount of nerve damage a neurologist usually will do very little. Again that's my opinion. Like you said, finding a good physical therapist is a good idea. Learn to use topical pain lotions and analgesic creams is probably a good idea. As from what I have learned is to learn to live with your new normal.
One of the main items for me anyway it to get some good solid sleep and not too much from drug induced. That is not easy when you are in pain or from SFN. Anyway get informed as you stated. Have a great sleep tonight. As always be thankful for your breath. MicTim