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Hypertrophic Cardiomyopathy (HCM) | Last Active: May 15 2:21pm | Replies (14)

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@jachrist

I had alcohol septal ablation, I'm not on Camzyos. Alcohol septal ablation surgery was uncomfortable but no doubt it was worth it. However I now have stiff heart syndrome.

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Replies to "I had alcohol septal ablation, I'm not on Camzyos. Alcohol septal ablation surgery was uncomfortable but..."

jhark | @jhark | May 13 9:28am

@jachrist thank you! I had not heard of stiff heart syndrome but just looked it up. They didn’t mention that as a possible issue yet. Do you need a pace maker or now have different treatment? That’s the hard part deciding what to do. There are no minor possible side effects to any of this 🤦‍♀️. All life changing side effects.

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