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typical side effect for Camzyos

Hypertrophic Cardiomyopathy (HCM) | Last Active: May 26 7:57am | Replies (17)

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@dconner Good morning, hope your appt went well. I have learned that with each appt, the docs are reacting to my symptoms, test results, feelings, etc. and twekaing along the way. I started on Camzyos 5 mg in Oct. Felt super for two weeks then I felt like I had the flu every day.
I went to work but tried to avoid people and just do my work. I feel like I lost Nov & Dec; wanted to hide from holiday gatherings. Based on improved gradient doc lowered dose to 2.5 in Dec. Continued to feel badly (edgy, tired, SOB, rapid heart rate) until the end of April.
Feeling pretty well right now although recent blood work showed that I am taking way too much thyroid hormone and it causes tends to trigger hair loss, rapid heart rate, edginess, etc. Doc has tapered the thyroid dosage so now I am adjusting to the lowered dose and feel hopeful. My point is...it is a journey and the docs will continue to explore and tweak along the way. Try to persevere, be patient and take one day at a time (sometimes I just want to get through the next hour!) You can do this...hugs and blessings... 🙂

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Replies to "@dconner Good morning, hope your appt went well. I have learned that with each appt, the..."

@christine270 Best wishes for a fast solution to all of the tweaking of dosages. Add or delete something within the mix has such individualized consequences. Thank you for reminding us all that we are essentially walking chemical factories.