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Myofascial pelvic pain syndrome in females. Unrelenting pain in pelvic

Posted by mshepard1 @mshepard1, May 7 1:29pm

Myofascial pelvic pain syndrome in females. Fractured many bones in pelvic floor in falling 11 steps! High tight muscles and unrelenting pain. Shaking all the time. Has anyone else had this???

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mackvogt13 | @mackvogt13 | May 12 3:56pm
In reply to @gizmojay "unfortunately many women with severe pelvic trauma and Myofascial Pelvic Pain Syndrome describe symptoms very similar..." + (show)
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unfortunately many women with severe pelvic trauma and Myofascial Pelvic Pain Syndrome describe symptoms very similar to yours, including constant deep pelvic pain, extremely tight pelvic floor muscles, muscle spasms, trembling or shaking from pain and nervous system overload, difficulty sitting or walking comfortably, and the feeling that the body is constantly “guarding” itself after injury, especially after fractures involving the pelvis or sacrum, because trauma to the pelvic floor can cause muscles, fascia and nerves to become chronically irritated and overactive long after the bones themselves heal, so while your experience is absolutely severe and exhausting, it is not unheard of in people who have had major pelvic injuries, and many patients eventually require a combination of pelvic floor physical therapy, nerve pain treatment, muscle relaxers, trauma-informed rehabilitation and sometimes pain management specialists to get symptoms under better control.

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@gizmojay yes pelvic floor dysfunction and pelvic pain in women is so common. its 1/3

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mackvogt13 | @mackvogt13 | May 12 4:18pm
In reply to @mshepard1 "@mackvogt13 thank you so much for replying. I also have IBS and some neuropathy issues as..." + (show)
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@mackvogt13 thank you so much for replying. I also have IBS and some neuropathy issues as well. I understand completely about physical therapy as I did it for four years before I fell! I will get some info on Naltrexone. Thanks also for explaining about the wands although it sounds like I am not ready pain wise to even try it yet. It’s so good to talk to someone who understands about the pain from high tight muscles as most people have no idea what this condition can feel like and how to deal with it. Be well.

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@mshepard1 yes ofc! i totally know how you feel! it can be lonely sometimes.

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mackvogt13 | @mackvogt13 | May 12 4:29pm
In reply to @mshepard1 "@mackvogt13 thank you so much for replying. I also have IBS and some neuropathy issues as..." + (show)
Profile picture for mshepard1 @mshepard1

@mackvogt13 thank you so much for replying. I also have IBS and some neuropathy issues as well. I understand completely about physical therapy as I did it for four years before I fell! I will get some info on Naltrexone. Thanks also for explaining about the wands although it sounds like I am not ready pain wise to even try it yet. It’s so good to talk to someone who understands about the pain from high tight muscles as most people have no idea what this condition can feel like and how to deal with it. Be well.

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@mshepard1 Nlatrexone changed my life because idk if i said in the previous oost but I had to drop out of ursing school, got excision surgery for endo, was on 10mg of birth control (normal dose 0.35mg), had and IUD and was in chemical menopause (i am 19) and nothing worked for my debilitating bed ridden cramps until I got on that and it took my cramps away but then all my other pain came through.
in pelvic therapy my therapis does ineranl massages and the pelvic wand is jsut so you can do that at home. there is multiple different kinds, like the one i have is bendable so easy to move around inside, there is one to put inthe freezer which apparently monopausal women like and and there is a vibrating one

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gently | @gently | Jun 9 9:38pm

I frightens me to think you might consider physical therapy with those fractures How long ago was your fall. i would want a drug called Forteo to hasten the healing of those bones. Some with fractures report great pain relief because of the healing. Have you had an MRI post fracture to ascertain that those bones are positioned to knit together. A good pain specialist can give you bupivacaine/ steroid injections for pain.

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