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Is anyone involved in clinical trials for ET, specifically for CALR?

Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (35)
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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @patty1962 Welcome to Connect. Thank you for joining in and sharing your involvement with the JNJ-88549968 Trial for ET/myelofibrosis. How long ago were you diagnosed with ET/MF? Can you share more information about how you're doing on the trial drugs? Has there been any changes in your conditions? Do you have both ET and MF?

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Replies to "Hi @patty1962 Welcome to Connect. Thank you for joining in and sharing your involvement with the..."
patty1962 | @patty1962 | 1 day ago

@loribmt Hello Lori!
I’m so happy to have read your story! You made it! What a journey it has been for you!! I’m actually in the hospital waiting for discharge from my 2nd step up dose of the clinical trial for the investigational drug JNJ88549968. It doesn’t allow me to attach a pic or document to make my life easier and not have to type it out unless it’s just my technical skills that are lacking 🤔. Am I allowed to send attachments here?

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