@rmoore901 and all... Thank you, @moore901, for the good information. I enjoy the auto-immune site that is quite good, great information and tips and friends. I often learn on that site more about dealing with my several auto-immune illnesses and others as well.

I do not think a myositis panel was run. I consulted with Muscular Neurology, Physical Medicine, Orthopedics, led by my wonderful Rheumatologist. I'll check the records to see and if not, discuss with my Rheumatologist who was spear-heading the search. Thank you so much for that tip. Interesting...

Blessings to you. Elizabeth

@rmoore901 and all... You may have never been told this, but, sir... You are an angel! I messaged my rheumatologist and in fact have an appointment with her next week. I, as is my custom since becoming my serious, only advocate and learning the advocate ropes, researched using Perplexity, NOT Google, to learn about myositis. This is a gold mine for me.

I suspect I have had Myositis for decades in a less active, less pervasive form. It may be an underlying cause of many issues and events I've experienced in the last several years especially. I researched the Cleveland Clinic and Mayo Clinic, my first 2 go-to's... and found information directly hitting my symptoms through many illnesses, most un-diagnosed, misdiagnosed, or put off on typically female diagnoses. These events fit smoothly into this diagnosis.

I recall being misdiagnosed with Myasthenia Gravis several years ago. In hospital, I was given 3 days of IVIG treatments. It was wonderful. I felt stronger, whole body stronger, It was amazing to me. I didn't think it would help, surely not as it did. That lasted several months, faded and I decided after this paralysis hit and now is full body on occasion, I will check if my rheumatologist thinks IVIG will help. I do. The muscle issue is worsening, consistently, and I don't see myself improving.

Interestingly, last year in the hospital and NH rehab facilities, the PT was excellent and helped significantly. Especially the recumbent stepper! On a limited basis. I tend to overdo throughout my life, so that is no exception, but learned quickly slightly too long on the recumbent stepper and I lost use of my legs. Could not pick up my feet. They were heavy. Glued to the floor!

I would love a recumbent stepper in my home, but obviously can not afford one. I am too weak and infection susceptible to go to the PT rehab or my 1st love, the warm therapy pool. That pool is total body and soul healing for me. Can't get to it...

So, thanks, again. You gave me a glimmer of hope... not for permanent healing, but for answers to many long questions. Putting a name on something bothersome is so helpful! I suppose I diagnosed it, sort of??? In my bumbling, non-medical patient way. This happens as we live longer with more health issues piling on if we advocate for ourselves. Research wisely. I do. So, Thank you many times over... Blessings, Elizabeth