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Why do I get so tired so easy?
Neuroendocrine Tumors (NETs) | Last Active: May 13 6:31am | Replies (20)Comment receiving replies
@nannybb No worries -- it never crossed my mind that there was any judging. As for the food issues, there have not been any answers as to why it happens. He gets a sharp pain on the left side (drs think it has to do with the pancreas not working properly). We keep track of what he ate and how long the pain lasts. There is no consistency at all. One day he eats french fries and is fine. The next day he has fries, he has pain. Our dr suggested he use GasX. So he takes 2 GasX pills and has to lie on his side directly on the pain. If he is able to do that, it goes away within 20 minutes or less. Unfortunately on our flight back to MN from AZ, he got the pain. He took the pills but was unable to lie down. It lasted 2.5 hrs of our 3 hr flight. Nothing makes sense!!We also work with a nutritionist from Mayo Oncology. That has been overall helpful but hasn't helped with any answers for this. I think I asked this before, but hope that you are working with a NETS specialist. It is so important!!
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@rkklinger Thank you for your answers. I asked about the food issue because I only fix meals for one...me. I'm not good at eating properly, partly because it's just not fun. I've never been a big vegetable eater. I'm going to try to do better in that regard, but the other thing is, one "specialist" aka foodie, tells you something is good for you, and you find yourself reading another article that says to back away from the exact same food. I have never figured out who "they" are, but I think "they" are driving me crazy. Seriously, I have a pain in my left lower quadrant that is not going away. I finally was in so much pain yesterday, I went in to the ER. There was blood and other findings in my urine. I sent a text to my doctor's nurse and they got me an appt. for Thursday. Hallelujah! It could have something to do with the shots. I'm hoping not. They also did a CT and said all was well at my cancer sites. They do not seem to be growing. My heart is slightly enlarged from the last time they looked at it. I've got an appt. for an echo. My heart rhythm has been off for at least a year.
Yes, I found a NETs specialist (surgeon) I just need a NETs oncologist. I have a referral for one, but so far have heard nothing. I'm going to ask about a nutritionist. That's a good idea! Wondering, as usual, what does your oncologist do, that having just a NETs specialist surgeon would not be able to do? Blessings 💕