YES! Sitting sucks! I live in Mpls and our sons and fams live in WA. We fly out 3-4 times a year. Ugh. I have two cushions that fold in half that I bought on Amazon that go Everywhere with me. Being female and carrying a purse or small backpack, it’s easy to put the smaller one in there. But regardless, I don’t care. That cushion goes Everywhere with me and I don’t care what people think. I simply can’t sit on wood or metal chairs or benches. But again, my PT has taught me very specific exercises and stretches to help loosen my glutes, hip flexors etc. plus internal work (yup- I know it sounds weird but it works) to soften internal trigger points. And I practice breathing techniques to help calm me wherever I go. So I do go to plays, movies, festivals etc. but I am mindful of my limits and listen to my body. If my bum has had enough, I head home. I’ve worked hard to train my brain that I can do these things and enjoy them while still taking care of myself, and being O.K. with having limits. My family and friends understand. I can absolutely feel your frustration. It is so limiting, embarrassing, frustrating, and socially awkward. It’s hard to describe how this condition can literally wreck you. Everybody else can SIT no problem!!!!!!! Again, been there, felt that, done that. When I finally stopped chasing another “cure” and learned to create my own toolbox of self- help techniques, things got better. It might be time to turn in a different direction and begin learning to like/love your body again instead feeling like it’s out to get you. Your brain gets stuck and you can help unstick it. I’m no guru or doc, but I have been in the ER countless times in the past, also had a gazillion procedures, and even “talked” my way into a mental health unit briefly because I simply could not deal with the pain anymore. (Diagnosed with major depressive episode minus suicidal ideation). That’s where I finally got hooked up with a P.T. and a pain psychologist, and I was on my way to a better life. I do have some medication I use if my pain is nuts. But I get out of bed now knowing I can do this instead of looking at my Google Calendar to see when the next appointment in the revolving door is. (I also have low-grade recurrent bladder cancer, osteoporosis, and GI stuff. So I get the doctor thing. OY). My very best wishes to you on this difficult journey. May you find hope and help.