@grettac Sorry to hear about the skin tearing and bleeding that your husband is experiencing. You are in my thoughts and prayers. What do the doctors think causes it? My research indicates that low platelets caused by mycophenolate might be a factor. Do you think the prednisone is the cause?

@grettac
My long time spouse with the kidney transplant over 7 yrs ago, his doctors are hesitant to reduce or change his immunosuppressants drugs. The first 14 months after transplant he had rejection, low hemoglobin issues (I gave him a shot 3X a week for that 8mos) and later CMV then six weeks before Covid19 arrived, he had his first good blood work labs . He has many negative side effects from the immunosup drugs especially with Tac. Mood swings, depression, gut upset, glucose plummeting though food and insulin are correct, fatigue-low energy, 24/7 body tremors and more. All his nephrologists know all these issues causing his low quality of life since receiving the organ to present time and have no suggestions to improve things. THe kidney functions alright GFR around 38 . He has yet to have a day of not feeling lousy. Long ago he had chemo 9 months and the light at the end of the t funnel arrived and he fully recovered; but this transplant journey ,so far has not seen "light" as we had hoped. I feel we are stuck. I am doing more of everything a household encounters to run. We live isolated still. From my academic research studies, quite a few recipients of a kidney transplant and on Tac, cellcept and Prednisone have very similar issues my spouse is having nonstop. We exist and don't live anymore for years. We are stuck. His doctors only focus on the organ working not quality of life is very low. I am so mentally drained coping with all this but I'll stick by his side. No matter what.