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Why do I get so tired so easy?

Neuroendocrine Tumors (NETs) | Last Active: May 13 6:31am | Replies (20)

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@nannybb Ron's first tumor was between the illeum and bowel. He had several colonoscopys due to polyps. Our dr saw a shadow and refered us to a surgeon. No one suspected cancer. They took out 1/3 of his colon. The surgeon cried when she told us. At that time there was no medication or treatment. We were just sent home. He had scans every 3 months and then 6 months and then yearly for 10-12 years with no indication of tumors. So he decided to stop checking December 31, 2022 he was spitting up a clear liquid for several hours so we went to the ER. The dr ordered a CAT scan and informed us that the cancer was back. That led to several biopsies and scans. He started on Lanriotide in January 2023 and has been stable until the scans last week. We had put off the 5-6 month scan because we winter in AZ. He can get his Lanriotide at Mayo Scottsdale so it works for us to go there. He is 82 years old and has been very active physically through the past 3 years. Unfortunately in November he developed AFib with a crisis response, had a pacemaker put in early March and his lung was nicked and ended up 20% collapsed. We were so hopeful for a stable report last Tuesday. We remind ourselves that he has lived with this cancer for 31 years and had a very normal life. Our prayer is that the PRRT will stabilize him again and he can go back to doing his 100 pushups a day!! We truly trust our doctors at Mayo. We believe cancer is a family affair and work together as much as we can. Hope this information helps!! Prayers for you and your family as well.

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Replies to "@nannybb Ron's first tumor was between the illeum and bowel. He had several colonoscopys due to..."

@rkklinger That is one amazing story!
So he stopped going for scans.....am I understanding you correctly? And he did not start the shots until about 3-4 years ago? He is so brave to be going for PRRT, after all the other uphill battles. The one thing I am hearing over and over in my head is to go back to exercising. Which is what he has been doing. That is what I have always done in the past with other injuries, and I got myself back. My family is not taking this cancer as serious as I wish they would. I have been in so much pain for 10 months. Tell your husband he is an tremendous, amazing inspiration. You are a wonderful wife. My prayers go out to you both. Thank you so much for answering my questions. 💕