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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6004)

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@jenniferhunter

@dancermurphy Can you share what type of neck surgery you had? I am a spine surgery patient and had a fusion at C5/C6 and at about the 6 week mark post op, the pain did increase a bit because of scar tissue tightening. I was also in a neck brace for 3 months which makes neck muscles weaker, and I had to work through rehab after I stopped wearing the brace. Physical therapy helped a lot, but I had to wait until that 3 month mark to start until after fusion began because I don't have hardware in my spine and that was frustrating to not be able to stretch to help the pain. After it fused, I was able to rehab and made great progress. My physical therapist also does myofascial release which helps release tightness of scar tissue. I'll post a link to a discussion I started about MFR that has a lot of information. I had a spine fusion with only a bone graft. It might be worth a call to your surgical team to discuss your symptoms. Inflammation increases pain and your inflammation in your body will be higher because it's part of the healing process from the trauma of surgery. They may not be familiar with MFR work. There is a therapist finder link in the MFR discussion. It's worth discussing your prescription too and the side effects you are getting. If you are having spasms in your neck muscles, those can cause balance issues and dizziness if it is moving the upper cervical vertebrae around and affecting the normal curvature of the spine. I have had that happen to me.

Fear also increases pain a lot. As a patient, I learned how to confront my fears, and I was able to recover from my spine surgery without any pain medication. I was a patient who had feared pain all my life, but by working on those fears before my surgery, I was able to get past them, and embrace the surgical help I needed. I just accepted that it was going to hurt for awhile, but that real post surgical pain was not even close to the level of pain I had endured before the surgery because of an epidural spine injection that caused a paraesthesia pain because the volume of fluid that was injected and had no where to go. I was convulsing and starting to pass out after that injection, and I used slow deep breathing to keep calm and try to control the pain. I was able to stop myself from passing out and that was a victory because I took back control, and the pain wasn't causing me to loose consciousness. I just had to be patient and I had a few weeks that were awful with stabbing pains that got worse if I moved at all because of he injection. This injection was done as a diagnostic test before I came to Mayo as a patient, and no one at Mayo asked me to do this. These epidural injections are used to put off surgery, and some patients get temporary relief from them. They are not FDA approved for injection of a steroid into the spine, and they carry some big risks. I refused to do any further epidural injections. That surgeon didn't want to help me anyway, and I came to Mayo.

Now when I think about pain, I compare the experience to that day when the high end my pain scale was reset to that new level, and I realize that it's not as bad as it could be, and I relax. Pain is a normal pain of healing. Pain can also be caused by muscles and tissues that are too tight, and I can do something about that with my physical therapist. So I now think about it as a measure of my progress. I used to fear that the pain would never stop, but now I see it as a challenge that I can overcome. I used art and music to confront my fears and learned to relax in the midst of what I was going through. You can join the discussion on Art for Healing here.

My story
https://sharing.mayoclinic.org/2019/01/09/using-the-art-of-medicine-to-overcome-fear-of-surgery/

Art for Healing
https://connect.mayoclinic.org/discussion/art-for-healing/

Myofascial Release
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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Replies to "@dancermurphy Can you share what type of neck surgery you had? I am a spine surgery..."

@dancermurphy, @jenniferhunter
HI!
I am also a spine surgery patient.
My chronic pain actually began with cerival pain. Remarkably, after one shot, the pain was gone for years and years. It started up again about 2 years ago. My pain doctor tried many different things, but they did not help. I had pins and needles down my arm and violent headaches would wake me up.
In addition to the cervical issues, I also had lumbar issues with unrelenting pain. I saw 5 different pain docs. The last one I went to was able to help me. He procedures would give me anywhere from 1 month to 4 months of pain reduction. It was something I could live with. About 2 years ago, at the same time I had issues with the cervical spine, my pain doc was not longer able to help my lumbar.
After over a decade of suffering, I had enough. There were months, even a couple of years when I couldn't walk because of the pain. It was then I decide to confer with a neurosurgeon.
After looking at my test results, he suggested doing the cervical spine first. Instead of having a fusion, he replaced C5/6 with artificial disks. He went through the front of my neck. For me, after a couple of days, the surgical pain was gone. Within 2 weeks, my headaches were totally gone as was the pins and needles.
I healed very quickly and easily so I started PT at 6 weeks post-op (instead of 8 weeks).
Then came the lumbar. What a difference!!!!!!
I had what was called and X-Life fusion of L4/5. The recover was HORRIBLE and VERY PAINFUL for me!!!!! I was on pain meds longer than I had every been. Then suddenly, at 4 months, the pain was suddenly gone!!!
I still watch myself VERY carefully as if I just had the surgery. Too many people start to carry on the way they did before surgery and then the pain returns. They say the surgery was not successful, but I PERSONALLY THINK it is because they didn't take care long enough. Even though the scars and pain might be gone, it could take over a year for the cervical spine to completely heal and up to 2 years for the lumbar.
That being said, I don't lift anything heavier than a gallon, I don't bend without bending my knees, and don't reach and hyperextend, I still use the gripper I got after surgery, I don't turn my head or body quickly, etc., etc., etc.
So that's my story!

Ronnie (GRANDMAr)

Thank you so much ! I will check into that . I added Reiki once a week and it super relaxes me . I just got back from a trip to LA where I had to work long hours but can rest now I see a neurosurgeon this week and had all new MRI they wanted to give me a steroid shot and I said no . I have had a few Pilate’s lessons but only do legs . I am a C5-C6 artificial mobi c disc replacement .