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Fatigue and Frustration with CALR ET

Blood Cancers & Disorders | Last Active: May 10 7:52pm | Replies (24)

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Profile picture for 1pearl @1pearl

Hi @nohrt4me ,
It is interesting that allele burden might be thought to be a larger factor in symptoms. I am not sure if that is true or not as I have a pretty high allele burden and high platelets but no symptoms. I have not had other treatments for anything though and hope to never need them. My younger and only sister had chemo for TNBC about five years ago and still has fatigue, neuropathy in her toes, and sometimes tingling in her right fingers.
I only work part time so less work stress for me than many. I spend lots of time working in the yard with the garden, doing tons of exercise, and learning new material with my daughter in her two college classes. I will continue to count my blessing and stay very busy with no time to worry about what I might or might not have that makes my platelets high.
Wishing everyone well and Happy Mother’s Day to all the moms.

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Replies to "Hi @nohrt4me , It is interesting that allele burden might be thought to be a larger..."

@1pearl I don't know if that's true either, only a theory. Clinicians are not using allele burden as a treatment basis as far as I know.

@1pearl I admire your spirit and perseverance!