Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
I started using an Anodyne Pro 300 several weeks ago and am getting some relief. I use it twice a day morning and night. I put it on one foot/leg then the other foot/leg for 25 minutes on each leg. Hopefully it will continue to improve and will keep you updated. I think it cost around $1500 and is approved by FDA but Medicare does not cover.
I could be very wrong, and please forgive me if I'm wrong but, I believe this is basically laser therapy. Some physical therapy offices offer the treatment and they use their own machine. May be a cheaper option than having to buy the unit although the home unit may maximize your relief. Maybe call some PT offices and just ask if they do laser therapy for peripheral neuropathy. That way if you want to give it a try you know which office you want your doctor to refer you to.
I will be moving to Bradenton, FL in a few weeks--does anyone know of any physicians that specialize in PN?
Every patient is different so each person is Evaluated separately. Treatment depends on each individual and their own symptoms. He doesn’t know exactly what he’s going to do with you until after he asks a series of specific questions to help identify YOUR specific type of Neuropathy.
Dr Van Passel is located in Sarasota that is my dr there are several in the practice Intercoastal Meidical 941-906-7155 era through she is very good and was the Dr that diagnosed me. I would make appt as there might be a wait there, she is known as the best in Neurology and very smart
Thanks--much appreciated. JB
Brett @ Complete Rehab told me that you spoke with him yesterday. Brett is a great, caring professional and will help you all he can with his experience. If you work it out where you can get treatment there, please come back on this group and let everyone know how it went. Brett has a lot of different treatments he uses depending on the intitial consultation questions and answers. I hope all is well and he can get you some relief, he certainly helped me.
Hi--I know I have tried the maneuver to get crystals back in alignment through my Dr and also at home using the technique. I know it helps a lot of people. Unfortunately, it didnt help me so I started youtube searching... I came across this Dr that does a technique that uses acupressure you can do yourself. For some reason, that DID help me.,There are all kinds of information about different techniques on there, and Ill try anything to see if it works. if one type doesnt, then try another.. 🙂
I did speak with Brett yesterday. He surprised me with a telephone call after I completed an on line form on his website. This in itself shows that he really cares about what he does and who he is. Also the fact that he is ex-marine also says a great deal.
I am a great distance away from his practice and if I can see him for help, trust me if he helps I will let as many know as possible. This condition has changed my life and really slowed me almost to a stop. I have also tried everything else available with little or no success.
Thank you so much Waltermc for your courage to speak up.
I have been to select health of the carolinas and received anodyne therapy, electro therapy, laser therapy, and still taking several recommended supplements and vitamins with minimal improvement, however it may have kept me from continuing to get worse. Is this the type of treatment you received at Complete Rehab? Thanks for your posting, because many of us are still looking for solutions or pain relief.