I just had an open bilateral nephrectomy (4/27) & living donor transplant (4/29) & my gods it’s the most intense journey. My guts are rearranging themselves, there’s pain from where my PKD kidneys were & the weirdest sensation of my new kidney. I’m feeling frustrated with my lack of freedom but also so amazed that it’s been 2 weeks & I'm able to walk around. There are good days & not great days. It’s also frustrating to only see or hear about transplant patients & hear that the nephrectomy is rare. It’s a bit isolating.