What happens during radiation for esophageal cancer?
My husband has stage 3 esophageal cancer diagnosed December of 2023. He began chemo in January of 2024 getting that treatment every other week for over 2 years now. Well now the cancer is slowing growing and affecting his swallowing. Food is getting stuck causing him to throw it back up. The doctor has decided to do radiation for the first time. I was wondering about what happens during radiation. Will his throat swell? I heard it would and there would be scaring. The doctor has mentioned this as well but I am a little worried about it closing up all the way! He said he would have to be on liquids eventually. I see a lot of your stories are chemo and radiation together and I was just wanting to hear about it first hand from someone going through it. Thank you for any insight you can give. he starts on March 23rd.
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My husband was also diagnosed with stage 3 esophageal cancer back in October of 2023, at the age of 76. He started a 6-week regimen of daily radiation treatments (except on weekends) that began the following January, along with chemo infusions scheduled for every two weeks. He didn't really have much swelling or difficulty swallowing while receiving radiation. During the six weeks, he was only able to receive two infusions due to some of his lab results. In my opinion, the radiation took more of a toll on his body than the chemo, which he actually tolerated fairly well. Radiation left him so weak....he didn't want to do anything and could barely get around. Whereas the radiation was supposed to be a precursor to surgery, in my husband's case, it made surgery basically a non-option.
Not only had the radiation ravaged his body causing him to be too weak for surgery, he was then found to have pulmonary fibrosis, which had not been previously diagnosed. The surgeon wouldn't touch him, saying it would be too risky.
After only the two rounds of chemo and three months allowing his body to recover somewhat from the radiation, he started on monthly immunotherapy infusions, which are still being continued. He gets a PET scan every 6 months and an endoscopy every 6 to 9 months. Hubby has basically had no side effects from the immunotherapy at all, with the exception of it causing his thyroid to out-of-whack, a quick fix with a daily thyroid med.
As of our last visit and infusion, earlier this week, the oncologist told us that if the results of the PET scan scheduled for the end of the month remains as good as they have been, he will be stopping the immunotherapy in the next month or two. Then we will just go for follow-ups and Labs. PET scans will continue on at least a six-month basis, and probably an annual endoscopy, unless a scan shows the need for something additional.
Needless to say, we are feeling blessed and hopeful. It's been a long, tough journey up to this point, and though we know it's not over, it's a bit easier walking the path these days. Hubby has even felt good enough to pick his golf clubs up again!
I hope your husband does as well with his treatments. Prayers for you both.
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3 Reactions@glassamigos My heart goes out to your husband for his ordeal and also to you. Would you mind saying where he received treatment and what type radiation? I had proton radiation therapy at MD Anderson. It's of course designed for the "energy packets" to die at the tumor, after delivering their energy to the tumor. This is specifically to avoid the type of side effects your husband suffered. I've really heard of no one else who has had to go through anything like that. I apologize, if you've already made where and how clear in a previous post. These threads are hard to follow sometimes, over a period of time...
@earle , Thank you so much for your kind remarks❤️. We live in Texarkana, Texas. The radiation treatments were done at the Temple Webber Cancer Certer at the local hospital, Christus St. Michael. Due to financial constraints, we weren't able to go to a large, well-known hospital.
In all honesty, I don't know what type of radiation the treatments were. Not sure we were ever told, or if I was just in the state of mind that I didn't understand, which could have very well been possible, under the circumstances. When we were given the diagnosis, the doctor told us that we needed to do x-y-z, but no referrals, no locations, nothing. He said well, you can go here, or here, or here, or maybe even here if you want. I walked out of there in tears and immediately called our primary care physician's office when we got home to make an appointment to see him. At that appointment, we filled him in on everything and he told us not to worry about a thing, he would get us hooked up. Within a week, we had an appointment at CARTI, in Little Rock. At that time, a game plan was put in place. After an EUS and scope, the radiation and chemo schedule was created in the anticipation of eventual surgery. Since Little Rock is 2 1/2 from home, one way, the daily radiation treatments were set to be done locally.
Everyone that we have dealt with after our diagnosis has been absolutely wonderful to us, including the surgeons we consulted with.
We feel that we're blessed to even be in the state we are at the present, as we certainly weren't sure of anything....at all.
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