@suzjlance
Nice to meet you!
With CLL being an active participant in your care is paramount to your Journey! Knowledge is key to understanding how this disease works! Understanding your genetic makeup and how it affects your Body helps you to make informed decisions on your overall care and health!
This CLL we share can not be controlled and eliminated, only altered and managed to a degree!
Unfortunately for us our genetic makeup decides what’s going to ultimately happen!
The best we can do is Live our best Lives daily! Hope that medicine helps keep the inevitable at bay for as long as possible!
Till there be a a cure, this is a life long process!
In the past 6 years they have made strides in medications for our use!
Car T therapy hold a promise but only a small percentage of patients reach MRD Minimal Residual Disease!
Bone Marrow replacement therapy yet that requires Chemo and potential set backs due to being Immunocompromised as we are already! Also ones over all health comes into play in the decision making process if it is even an option!
Infections are our worst enemies and we must be vigilant against them!
Like my Dr says, anything over 101 temp go to the ER period!!!!!

My Motto is Live,Love, and make the best of everyday one day at a time!

Best wish’s
Cliff