@scoop

Hi there! Sorry it's taken me ages to respond.

It's a great question. I started this trial in late December. In January I had hempotysis a couple of times. Pulmo put me on 10d of doxy. By Feb still had mild hemoptysis every so often—but enough that they considered it abnormal for someone with BE— and I tested positive for Moraxella, H. Flu and Corona 222E and so they put me on Levaquin which cleared up everything and I no longer had hemoptysis.

I haven't been sick or had any other hemoptysis since March

My pulmo said if I am on the drug (and not the placebo) it typically takes 6 months to really start showing results. I have no idea if I'm on the placebo. Back in Feb I would have said no, I don't think I'm on the drug, simply because I was getting sick. But I have a 4-yo and she brought a lot of bugs home (Morxaella is common in kids) and so I would say having a preschool aged child is a variable that this trial wouldn't have factored in. Drug or no drug, I'm not sure it would be possible for anyone to avoid getting sick under those circumstances. But, she was also sick in April and my wife had a nasty sinus infection coughing all over the place and I did NOT get sick in April so now I would say I DO think I'm on the drug because I haven't had any sickness and I'm just about at 6 months. But overall, I have no idea. I'm not sure how much longer the trial lasts, it's a big vague but I'm assuming through the summer at least.

I will say I have not had a single side effect and I like that this drug is inhaled and going straight to the lungs versus taking a pill.

I'm still doing airway clearance as consistently as possible (2x a day) and inhale the trial drug afterwards.

I will keep you posted and thank you for asking!