← Return to Living with Neuropathy - Welcome to the group

Discussion

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

Comment receiving replies
@johnbishop

@lindachakra before I met with a neurologist and was diagnosed with idiopathic small fiber peripheral neuropathy my primary care doc prescribed gabapentin for me also. I took it for about a week or so and told her it wasn't working. After a conference with her doctor team and explaining that I only have numbness with my feet and legs the lead doctor said the gabapentin is only for pain and they set up a referral to meet with the neurologist. That all started my journey trying to find something that helps. Besides the supplements I take which I think have slowed or stopped the progression (subjective on my part), I'm looking into myofascial release therapy. There are members who have had success with it and it does sound hopeful to me. I just have to set some time aside and find a therapist that is close enough. Unfortunately I'm going to have to wait until after I have my upcoming knee replacement done and am able to drive again. There is a great discussion here on Connect if you want more info.

Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

You mentioned your thumb pulls into the palm of your hand. Have you seen an orthopedic doctor? I found an article that sounds similar to what you are experiencing.

Tendon trouble in the hands: de Quervain's tenosynovitis and trigger finger
-- https://www.health.harvard.edu/newsletter_article/tendon-trouble-in-the-hands-de-quervains-tenosynovitis-and-trigger-finger

Jump to this post


Replies to "@lindachakra before I met with a neurologist and was diagnosed with idiopathic small fiber peripheral neuropathy..."

Thank you--for all the advice! I haven't seen any Dr besides my regular Dr , and the guy that did the nerve test (he was kind of a ding bat--kept saying to me" well, you didnt want to live forever, did you? Maybe this is a blessing in disguise"...so I never went back. I live in a remote, very remote place in Michigan, hard to get good medical care unless I travel hundreds of miles and Im retired now , live by myself so I have to watch my $ a bit. Michigan is taxing my retirement (SS and pension) quite a bit. trying to try a few things first. Will read and study what you gave to me though. I found out years ago when I had thyroid disease that kept me sick for over a year, that before I go anywhere I research it myself. You almost have to.