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2:30 am wake-ups: What do you do?

Sleep Health | Last Active: Jun 16 7:21am | Replies (34)

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Profile picture for roxiesmom13 @roxiesmom13

@daisy17 LDN when used for sleep alone is off label and considered experimental so there is not much research on its effectiveness. Funny when I asked my new doctor about it she said she would not give it to me for sleep. When I saw a second doctor and asked about it he said for me to take higher dose gabapentin for my fibromyalgia and it should help with sleep. Frustrating to say the least. Now trying vagus nerve stimulation. I get roughly 4 hours of sleep most night with two awakenings. Get up go to bathroom back about every hour to hour and a half until I finally give up and just get up and find something to do.

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Replies to "@daisy17 LDN when used for sleep alone is off label and considered experimental so there is..."

@roxiesmom13 That is frustrating and makes me a bit angry. Why would a doctor push higher doses of gabapentin when it has so many side effects and can lead to dependence and addiction instead of letting their patients try LDN to see if it helps? Also, with gabapentin, patients often develop a tolerance to it over time, so higher doses may be needed to achieve the same effect.

As far as LDN being "off label", Trazadone is prescribed off-label for sleep issues as are many other drugs.

I didn't know you had fibromyalgia. I developed it in 2021 after I got Covid and that's when my insomnia started. So I originally started taking LDN for my fibromyalgia pain but found it also helped my insomnia. LDN reset my body or something because my pain and sleep issues went away. It was a godsend for me.

I had to go to a pain clinic to get my prescription but found out my PCP also prescribes it. If you also have fibro with your sleep issues, I would recommend finding another doctor who would prescribe LDN for you. It doesn't work for everyone, but helped me so much. Here's an article about how it helps fibromyalgia: https://www.verywellhealth.com/low-dose-naltrexone-ldn-for-fibromyalgia-cfs-716070