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Triple negative - newly diagnosed and looking for your experiences

Posted by roxy66 @roxy66, Oct 26, 2025

Im just diagnosed and frightened as hell. Please chime in with your experiences and lessons learned. Also any info you can share to help me prepare for chemotherapy, etc. 🙏🏻 Thanks

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myoga | @myoga | May 8 9:33pm
In reply to @leolion811 "I am a 3 time TNBC survivor ( occurred 3 times in 7 years) 2 &..." + (show)
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I am a 3 time TNBC survivor ( occurred 3 times in 7 years) 2 & 1/2 years out from last diagnosis. 5 different chemos, 50 radiation treatments, 33 Proton Therapy treatments total for all 3.

First, I would insist on Proton Therapy instead of traditional radiation. Ask for newer chemo choices instead of the “Red Devil” and “Gemzar”- those put me in hospital. Make sure you take someone with you to every oncology appointment as well as chemo session.

Where are you located in the US?

Join as many TNBC groups on FB- invaluable information in those groups and last but not least, look out for lymphadema from radiation & fibrosis. It’s a horrible side effect from radiation. I deal with it 24/7. Any questions, please contact me. I wish I had known then on what I know now. 🙏🏼🙏🏼

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@leolion811
My hat is off to you. Three times in 7 years is just too much. Hope you won’t have to go through that ever again. Hugs.

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leolion811 | @leolion811 | May 8 10:28pm
In reply to @myoga "@leolion811 My hat is off to you. Three times in 7 years is just too much...." + (show)
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@leolion811
My hat is off to you. Three times in 7 years is just too much. Hope you won’t have to go through that ever again. Hugs.

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@myoga thank you very much ❤️

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