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lanijean11 avatar

Does anyone have Anti-MAG with Cryoglobulinemia with IgG MGUS?

Blood Cancers & Disorders | Last Active: Jun 10 12:04pm | Replies (13)
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Profile picture for Patty, Volunteer Mentor @pmm

Hi @lanijean11, I think your questions may be served better if this is addressed in the blood disorder group. The problem with peripheral neuropathy and attributing factors is that it is hard to narrow down whether the neuropathy and the MGUS are coincidentally or causally related. There’s a very long but informative paper put out by the Mayo clinic on this topic which I’ve attached in case you haven’t looked at it. Maybe some of our other members will chime in with their anecdotal information as well.
https://www.mayoclinicproceedings.org/article/S0025-6196%2817%2930118-0/fulltext

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Replies to "Hi @lanijean11, I think your questions may be served better if this is addressed in the..."
lanijean11 | @lanijean11 | May 9 4:58pm

@pmm I am being seen at UCSF Oncology and Neurology. It has been established that I do indeed have Anti-MAG and Cryoglobulinemia. I have been slotted in the extremely rare disease category due to the fact that my M protein is IgG not an IgM protein. I have gone through almost 10 years of testing and this has been the final conclusion. I would just love to find someone who falls in my category to talk to

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