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Anyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: Jun 22 7:21am | Replies (368)Comment receiving replies
Yes. I was diagnosed a few months ago. No treatment yet except what I am doing to build my immune system. At this point I’m fatigued and losing a lot weight.
Replies to "Yes. I was diagnosed a few months ago. No treatment yet except what I am doing..."
I was diagnosed with CLL about 2 years ago, upgraded from MBL. So far I’m asymptomatic. What can I expect in the future?
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@suzjlance
Fatigue goes hand and hand with CLL. At times I feel good if I can get dressed and make it to my recliner! Other days I am in the Garden for 10 minutes!
Weight Loss can also be symptomatic of CLL!
Are you having any other symptoms like lymph nodes swelling in neck, arms or else ware?
Treatment usually does not come around till you are symptomatic with multiple areas of involvement like swelling lymph nodes, Night sweats, poor blood work. These in combination usually result in beginning of treatment!
You need a good relationship with a Hematologist/Oncologist to follow and partner with!
There are only a handful of CLL only specialists in the world who only specialize in CLL!
But a good Hematologist/Oncologist will be able to help you on this journey!
I was diagnosed in Oct 2020 at 64 I’m now 70. Everyone of us is unique and different because of the genetics so it’s not a cookie cutter and treatment is individual in nature and based upon the Fish and Flow Cytometry results!
My results and prognosis is quite poor however many people don’t require treatment at all or for a very long time! Most fall into the latter group!
Best wish’s
Cliff