← Return to How to find balance while caregiving

Discussion
Gratia avatar

How to find balance while caregiving

Caregivers: Dementia | Last Active: 7 hours ago | Replies (31)

Comment receiving replies
Profile picture for Traci @tracidw

I try different things at different times. It is vastly different day to day, hour to hour with my Mom due to Lewy Body. But, all dementia has similar issues. If there's an instant fix, perhaps an app to tell me, that would be great. Trial and trial, what works one week might not the next.

When I'm more stressed, dealing with something (dental work right now), etc, I take more "me" time and do my best not to feel guilty. I have a fun project going on now - making about a 5-foot artificial clam and pearl for a stage - and I'm doing paper mache and having a blast. I work on it a few minutes a couple times a day.

Just a few minutes of something fun can release some stress, increase endorphins.... or just bring a smile.

We are with you.

Jump to this post


Replies to "I try different things at different times. It is vastly different day to day, hour to..."

@tracidw Hi Traci,
I understand and agree… it’s different day to day here too, and we do the best we can with steady schedule and giving consistent care. I get very tired from the nocturia wake ups all night. But I keep reminding myself it’s not forever and this is the only option right now.

I love that you’re building a set! I worked in theatre in a past life doing props, then moved onto wardrobe and finally settled in as a makeup artist for years in LA. Honestly, I miss my life & I am grieving that loss. I write short stories during early morning quiet hours, when possible, but I miss freedom. Sometimes this feels like being under house arrest. I’m not one to sit still or watch tv for hours…so the experience has been testing my ability to be patient and find other ways to create and still stay connected with my inner life.
Sending you love and support and strength! ❤️