Cauda equina syndrome (CES)

@mackvogt13 that is bizarre! I have some degree of CES but also IC! I never think of them as related. I have been in remission with my IC for about a year and a half (after having DMSO installations). My remission I attribute to increased B12 plus HEME Iron. (plus I eat an egg in the morning (more B's and iron) and a diagnosis of Insulin Resistance for which I am on Metformin and my GOUT (high uric acid levels) and now I take Allopurinol. I stopped needing to adjust my diet and stopped getting irritated. So I don't know which helped but maybe it all did. Something to look into for you!

@loriesco So as I look more into CES that seems to be something created by a trauma and not something chronically brought on but causes chronic pain. however, the pain of IC and CES r similar and i do have all that back pain and weakness. I actually just got checked for a herniated disk. If you have CES i’m assuming you would know within 48 hours. thank you for all this information. the installations and DMSO sound pretty similar. I am glad you don’t have to adjust your diet anymore and you have figure things out. Hope you are doing better!

@mackvogt13 CES is a physical problem. (I didn't know if you meant emotional trauma). It IS chronic. (here's the definition: "Chronic describes a condition, disease, or problem that persists for a long time, typically lasting 3 months or more, is long-lasting, or recurs frequently. It often implies a slow progression rather than a sudden onset, often used in medicine to contrast with "acute," and in daily life to describe persistent negative habits or situations." Cauda equina is a nerve root - a major one - and it can squished over years. That was my situation. Probably over 30 years as my lumbar spine compressed and finally squashed the nerve root to its demise. If I wouldn't have had surgery I would have lost use of my legs... I was on my way. I had surgery immediately when I met my current surgeon. I was ready! hang in there! Blessings of pain relief and a great outcome!

I can't seem to find a group for cauda equine syndrome so I chose chronic pain. So if there are People on here with CES please respond. My name is Skip, had back surgery and had a blood clot after surgery. It compressed the nerves at the nerve root, have most of the normal problems. Bad back pain, numbness down my legs, pins and needles in my feet, have to use a cane or wheelchair, loss of bladder function, terrible rectal nerve pain, I could go on, but if you have CES you no what I mean. Have had this for about 8 months now and I would like to hear from anyone who has had treatment for CES. My pain Dr. has no clue what to do. Just on pain meds now and would like to know if spinal injections would help. This stuff is really bad, Lyrica doesn't seem to help, Morphine and Oxycodone help but in no way takes the pain away. I really hate the mornings when the meds have wore off a bit and I have to get out of bed, sometimes I take a pain pill and give it a half hour or so then get up. The pain just continues to worsen and I'm concerned about the future. My Surgeon just stuck his head in the sand, wouldn't even discuss my diagnosis with me just wrote it down so I could Google it. He has virtually told me nothing. Will never go back to him. See a new Surgeon in a couple of weeks. Would love to hear your stories.