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sandramgus avatar

Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: May 10 5:16am | Replies (182)

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@lgb55
If you have MGUS, I would think your kidneys are probably ok, as with MGUS the M protein is very small. Maybe I am incorrect. You need to trust the oncologist I think or find another one. This one is telling you, you are ok, I think. How often is he checking your blood levels? Sometimes its 6 months and sometimes yearly. Also if you have has MGUS for years, that might be good? The %age of cases that progress to MM is small actually.

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Replies to "@lgb55 If you have MGUS, I would think your kidneys are probably ok, as with MGUS..."

@tsch
Thanks for your reply.
I have had MGUS for 3yrs. I am checked every 6 mos. It seems my protein levels have gone up some each time. I also have Afib and my cardiologist told me the protein can be a factor for my Afib. So it seems MGUS could affect other things. I have not had tests that has proven that.

@tsch when I go in for my quarterly check ups one of the things that they always check is my kidney function. So far so good! I’m always grateful for the good medical care I get “watching and waiting“ related to MGUS. I would prefer not to have it, but since I do, I’ll take it!
I try to look for the positives.