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Anyone want to talk about Myelofibrosis?

Blood Cancers & Disorders | Last Active: May 21 6:00pm | Replies (185)

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Profile picture for rivieramaya2009 @rivieramaya2009

@1pearl
Hi~I was diagnosed with SMF June 2025, after having ET for 33 years with HU treatment for that for about 5 years. Completely healthy until a year ago. I’m 76 and periodically have malaise, inflammation in my gut and swollen ankles, headaches (mild) and fatigue. I eat really well, walk, and Pilates 3 times a week, and take plenty of supplements, and let’s not forget prayer! Not sure if it’s helping keep me healthy, but can’t hurt. I take no medications and am grateful. My platelets are in the 700’s and red counts are a little low—-I think 10.8. I go for a check up next month. I try my best not to have stress in my life. Sometimes it sneaks in. One of these reasons I’m not always on Mayo connect. I wish you well!

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Replies to "@1pearl Hi~I was diagnosed with SMF June 2025, after having ET for 33 years with HU..."

Hi @rivieramaya2009 ,
Thanks for your post. I agree with all you said and do. May I ask how it was decided that you changed from ET to SMF?
Stay positive, pray, do things that make you happy, and avoid stress when possible is what I try to do myself.