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What to do when pulmonologist is passive?
MAC & Bronchiectasis | Last Active: 35 minutes ago | Replies (34)Comment receiving replies
Thank you all so much. UNC requires dr referral. I made an appointment for Dr Colin Swanson at Emory….DECEMBER 31st, lol. I asked if I could be put on a cancellation list and they said ok, however unlikely.
So I’ll try to get referral next week from nurse practitioner at pulmonologist office, and also a prescription sent for an OPEP.
Y’all have literally saved me and I can’t thank you all enough
Replies to "Thank you all so much. UNC requires dr referral. I made an appointment for Dr Colin..."
@sunnirivers Dr. Swenson has a podcast on BE/NTM that is fabulous. NTMTalk. Honestly, he seems like the BEST. A 6 month wait at the designated care centers is pretty standard. I have gone to two (out west) and in both cases it was a 6 month wait for my initial appointment. Cancellations do happen, but are pretty rare. When you’ve waited 6 months for an appointment, you tend to make it, come hell or high water. Dr Swenson is speaking at next week’s NTM conference hosted by NTMir, which you can still sign up to attend virtually. (https://connect.ntminfo.org/events/event-description). If you can get in earlier at UNC, worth doing so, but honestly I think I would still see Dr Swenson, if only for another opinion ( if you can swing it). If he weren’t so far away from me (literally opposite coast) he would be top of my list.
@sunnirivers Dr Colin Swenson co-hosts (Wendy Drummond is the other host) a podcast called NTM Talk. You should take a listen-to all seasons. They just released a new season after a few years break. He is very well respected and seems to be very up to date and compassionate. I live to far away but would jump at a chance to have him as my treating doctor.
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Call his office every week late in the day to inquire about cancellations etc. Sometimes their schedules change and things open up.