I'm 87 and my NET's were discovered accidentally on a CT scan for a hernia. I have never had symptoms and still don't. I get Octreotide or Sandostatin every 28 days, and the only side effect seems to be a loose stool. After 6 months of treatment, my serotonin and chromogranin levels are near normal, but I haven't had a second PET scan yet. As you see from the other posts, everybody's experience with NET's is different. You need to find an experienced NET oncologist, even if you have to travel. We were fortunate in finding an MSU surgeon who recognized the condition immediately and put me on the right treatment track.