@jhhaas Good for you! I bet THAT was a relief. Since my operation in July of last year, I have not had any CAT scans done. I'm definitely bringing it up in my next visit. I too was told it should be a CAT every 3 months for the first year, than once a year thereafter. Makes me nervous....but I am on the miraculous shot. ....3 times a day self administered. Breast cancer runs in my family. I thought for sure if I were to get cancer, it would have been in that form. I read up on the type my grandmother and mother had, and it turns out it is a form of NETs. I'm getting a mammogram the first of June. Just another thing to bring up.

@jhhaas Wondering, did you have pain after your surgery that lasted more than 6 weeks?

@jhhaas
As my interventional radiologist always says, “With DIPNECH we can walk not run..” It’s so slow to change, it’s good to watch and wait. 😊