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One year PO and now it seems I'm Stage 4 :-(

Prostate Cancer | Last Active: 4 days ago | Replies (17)

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My wife and I met with the radiation oncologist Dr. Mitro for the first time yesterday and were there from 8:30 to a little after 11 but it was worth every minute. He’s the most thorough doctor I’ve ever seen and explains everything so you can understand it. It is in the bone marrow and the area is a bit over an 1”(2.7cm) in length and filling that entire area of marrow up and that’s why I'm having pain in that area of my right humerus. One of the first things he said was you're going to live a long time. His plan is to zap it 5 or 6 times with SBRT radiation. I go next week for a CT to map the cancer and when the mapping is finished we’ll start radiation which could be a week from then or so. He said the bone structure is still in really good shape because it was caught early so no need to operate to stabilize the bone. I’ll also be doing hormone therapy for 18-24 months, he said my Urologist has to decide that but will most likely be Lupron. He said I’ll have to stay on top of this because there’s always the chance it could show up somewhere else down the road so that means frequent PSA tests. He was impressed that I even knew about SBRT radiation therapy was and told him I have been on the Mayo Clinic Prostate forum for a while mostly lurking. I take it he is familiar with this forum because he said there's some guys on there that seem to know as much about prostate cancer as some doctors. He also said he wouldn't be surprised if some on here aren't retired doctors trying to help people. I was seriously impressed with the guy. I have seen so many different specialists over the years due to numerous medical issues I have including being a 37 year sufferer of Ménière's disease that had 5 hours micro surgery on my right ear for an Endolymphatic shunt in '95 that helped a lot with the vertigo but done nothing for the tinnitus and hearing loss, I had 3 or 4 level lumbar fusion in '09 that turned out to be a failure, I had C5-C7 fusion in '22 which was a resounding success but I now have another bad bone spur pressing a nerve in the C4 area that's going to have to be addressed but they won't do a thing until the cancer is under control. My point is this Dr. Mitro was a pleasure to deal with. When I went through those doors I was nervous as heck but I left feeling pretty good about it as good as having Stage 4 cancer can feel. He even explained in a little detail about how the TrueBeam linear accelerator works. I have to brag on the staff also they were extremely attentive the whole time we were there.

He said the cancer is not centered up on this cross section image of my humerus because it's several layers being shown and zoomed in 10x. He showed me other images that the cancer was perfectly centered inside the bone.

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Replies to "My wife and I met with the radiation oncologist Dr. Mitro for the first time yesterday..."

@im62at2024 wrote "One of the first things he said was you're going to live a long time."

I'm glad to hear that (and that you had such a helpful appointment). Some people with a few bone metastases are still hearing at first that they have only a few years left to live, which in many/most cases is scaring them unnecessarily. So much has changed in the past 5–10 years.

As I think I mentioned earlier in this thread or another, my family doctor has told me to start planning for old age again (I'm 61, and was diagnosed with stage 4b prostate cancer at age 56). She's more worried about the long-term risk of metabolic syndrome than the prostate cancer itself now. My oncologist wishes he wasn't stuck seeing me every 3 months, since nothing much ever happens ("yep, you're still fine"), but he's stuck with it because they signed me up for the IRONMAN study back in 2021. 🙂
https://www.mayoclinic.org/diseases-conditions/metabolic-syndrome/symptoms-causes/syc-20351916

@im62at2024 Don’t settle for Lupron - DEMAND Orgovyx! Better in almost every way, especially cardiac SE’s, as shown by the recent post
‘Cardiovascular Risk of ADT’.
Phil