I’m new to this website. I was diagnosed with statin induced necrotizing myopathy in Oct 2025. Since then I was under treatment of IVIG and prednisone plus Azathioprine. My legs are very weak. I’m still dealing with a lot weakness in my legs and arms. I fell twice, I tendons and biceps were torn. I just went through a rotator cuff surgery which made my mobility even 100 times worse. I was hospitalized last week for 4 days to start a new treatment plan which consist of steroids, IVIG infusion and Rituximab infusion. I’m still on high dose steroids. It has been 6 months with no improvement for me. Is there any other treatment option that worked for some other patients?! Or if somebody had the same treatment plan that I have and the outcome.
Mana