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sandramgus avatar

Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: May 10 5:16am | Replies (182)

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Profile picture for Patty, Volunteer Mentor @pmm

@lgb55 oh and I forgot to say…kidney involvement is called MGRS (renal significance) and is VERY rare. According to the Cleveland clinic…
“ How common is MGRS?
MGRS is very rare. It’s estimated that less than 1% of people have it. It’s more common in people over age 60.”

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Replies to "@lgb55 oh and I forgot to say…kidney involvement is called MGRS (renal significance) and is VERY..."

@pmm thank you Patty for replying to my message. Especially for the MGRS input. I know little about this and any information is appreciated. I get very frustrated with hearing “ we just have to watch it”. I would feel better if there was something I could be doing to help myself. I’ve always lived a clean life style so the regular : don’t smoke don’t drink will help you just doesn’t apply to me so there’s nothing for me to try.
I hope as I read the comments from others I can pick up something that might help or that I’ve not heard from my oncologist.