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← Return to B12 deficiency mimicking MDS
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@chrissy2310
Hello, I recently was told from a genetic test from biopsy and after wbc and rbc lowered one month that it appears a 5% MDS problem! Oncologist told me just go live my life, it could be years. Of course , that disturb me. But then blood work went back to almost normal and another Oncologist told me I did not have MDS b/c my numbers would not rise back if so. I’m living a mystery about that.
Your post made me wonder if that was related just to a B12 deficiency. I have to give blood every 2 weeks b/c of hemochromatosis so maybe B12 was really the source of MDS diagnosis. My understanding to have MDS your numbers all will be low, white blood count, red blood count, hemoglobin etc. Hopefully all is well for you now! Wish you a healthy year. Thank you for post.
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@blessedgrandma1 Hi thank you for your reply. My haemoglobin levels are now 132. I see my consultant next week for the last of the results of the bone marrow. My GP told me yesterday that there was a result on my medical records done on April 10th, I think it was called a intrinsic factor antibody test that had a comment on that said they need to do further test into pernicious anemia but don’t know anything about that it must have been done in hospital on the emergency same day ward. I am back to normal in every way, although I do get tired quickly but iv done nothing for nearly 3 months as ice cold extremities which stop me from walking properly, eating and I struggled to talk at times. My energy levels were on the floor. Iv had 2 blood transfusions in 3 month that were 3 weeks apart and didn’t help that much as only one bag each time but then I had loading doses of b12 and I’m now on them twice a week for a month whilst waiting for end results of bmb. I can walk drive, eat go up stairs I’m near normal apart from I have slight pins and needles in my hands and feet but that will be nerve damage. I hope all this is positive news but I still am worried about the results. Iv read that b12 wouldn’t raise my haemoglobin levels to the extent they have without me having a deficiency. I could possibly have both but don’t think I’d feel this well after being so unwell. Great news that you didn’t have MDS, how are you doing now x