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@nellellen hello. I was diagnosed with ET last year. I take HU daily and a baby asprin. I am triple negative. Last fall I was diagnosed with Sjögren’s Syndrome. I am taking pilocarpine for dry mouth but it also helps with other dry membranes. I use restasis for my eyes. Doing ok on all these treatments so far. Side effects of treatments are manageable. I think I had both diseases for awhile before I was diagnosed, but the symptoms of Sjogrens got worse as my platelets increased. I kind of wonder if my Sjogrens is a side effect of ET or it is just a coincidence that I have both. I do not have the biomarkers for Sjogrens. I have heard of some patients who develop Sjogrens after taking an interferon, but not other folks who had Sjogrens way before their MPN diagnosis.

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Replies to "@nellellen hello. I was diagnosed with ET last year. I take HU daily and a baby..."

@eloise999
I too have Sjogrens and ET. Take HU and baby aspirin daily but am constantly changing HU dose as platelets constantly go up and down. Now taking 9 doses a week. Have Sjogrens for about 8 years and ET for 2 years. The Sjogrens accelerated when I got ET. Take xylitol tablets at night and xlidra for my eyes daily. I am 86 and have a lot of fatigue but count my steps daily and do utube
Senior exercises of tai chi and balance exercises as often as I can. I feel better when I get some exercise. The diseases slow me down but I am happy as I do not have extreme pain. I am grateful for that.