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DiscussionAnyone with Essential Thrombocythemia & Sjogrens or autoimmune?
Blood Cancers & Disorders | Last Active: May 7 4:01pm | Replies (10)Comment receiving replies
Replies to "@nellellen hello. I was diagnosed with ET last year. I take HU daily and a baby..."
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@eloise999
I too have Sjogrens and ET. Take HU and baby aspirin daily but am constantly changing HU dose as platelets constantly go up and down. Now taking 9 doses a week. Have Sjogrens for about 8 years and ET for 2 years. The Sjogrens accelerated when I got ET. Take xylitol tablets at night and xlidra for my eyes daily. I am 86 and have a lot of fatigue but count my steps daily and do utube
Senior exercises of tai chi and balance exercises as often as I can. I feel better when I get some exercise. The diseases slow me down but I am happy as I do not have extreme pain. I am grateful for that.