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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: May 7 8:48am | Replies (907)Comment receiving replies
Replies to "Thank you! I’m relatively new here. Is there a different thread related to Aficamten?"
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@carolinca welcome to the forum. I think the link below will take you to a discussion thread relating to aficmaten (Myqorzo). There are lots of other mentions of aficamten in the HCM threads, especially from people for whom mavacamten (Camzyos) hasn't worked. I got lucky with Camzyos as all of my symptoms completely disappeared in just 12 days, and I have not had any negative reactions other than a minor increase in blood pressure that was treated with a tweak to my blood pressure meds. Like any medication, some folks have not responded well to Camzyos - it didn't work well, or it caused unacceptable side effects, or for some, it actually made things worse. See the comment from @cindyw9999 as just one example (sorry to hear it wasn't helpful for you Cindy.) Sometimes the best solution may be myectomy or ablation. We are all different so having another treatment option (aficamten) is exciting news even for Camzyos users like me. Please do keep us posted as you begin this journey.
https://connect.mayoclinic.org/discussion/myqorzo-has-anyone-tried-this-new-alternative-to-camzyos/