← Return to HCM-ers: Introduce yourself or just say hi

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Profile picture for Debra, Volunteer Mentor @karukgirl

Hello @jeannelamana, Jeanne, I am so glad you are here.
Welcome!
Three weeks is right around the corner! Anybody would be anxious, and though I can't testify to having depression, I do believe added anxiety about this big surgery would for sure be an issue.

I'm sorry to hear that your beloved walks have become such a disappointment. I felt those same things before my surgery. I was a big time walker/runner and could still do my six miles on some days, and other days I was actually afraid I might die. I would purposefully wear bright colors in case I went down so they could find me easier if I did die!
The good news is I made it to surgery and I made it through surgery and got my life back.
Now to be honest, I was very healthy and active like you, but I was never able to be 56 again. That was my best time in life. Then HCM, which was hiding inside my heart all my life decided to start taking the things I love away, one at a time.
I could hardly tie my shoes without feeling short of breath. I was 62 when I had my septal myectomy at the Mayo.
What a blessing!
You will be in the best of hands and you will feel the world class care yourself.
I'm sorry about not being able to answer your question about what Dr Dearani or Dr Ommen will or will not prescribe.

In the meantime, I know nothing I say can really help chase away your current feelings, but you know you better than anyone, so please do advocate for yourself and ask. And thank God you have a supportive husband. That is a blessing.

Q: Have you had a chance to create your online patient portal through Mayo Clinic? That's the place to ask that question.
Do you have any other questions that you have not found answers to here on Connect regarding open heart surgery?

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Replies to "Hello @jeannelamana, Jeanne, I am so glad you are here. Welcome! Three weeks is right around..."

@karukgirl Hi Debra, thx for replying to my post. Yes, I have the portal up. It just seems to have two women for me to contact that are not medical or even located at the clinic. They have been making pre surgical appts. What they post for me is very confusing as they have been listing many conflicting days and times for the past month or so. As it stands now, I won't be meeting any doctors prior to surgery. (Ommen/Dearani) I know that can't be right. They even have the surgery listed on the day before I was told it would be, with an evaluation being done the day after surgery with a location I need to get myself to. I am hoping it works itself out in the end. I hope it is more organized when I get there. I hear wonderful things, I just haven't experienced it yet with the schedulers. I'm sure they are doing their best with the information they have. I also hope they don't read these posts!