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@sillyblone
Thank you so much for your reply. My husband is currently in acute rehab after I took him to ER when he could no longer stand on his feet. He was fine the day before. This has happened twice so far -- once it was 22 days after he got out of rehab (and I take him to outpatient rehab 3x week) and the most recent was 32 days after he came out of rehab. Not one doctor can explain why this happens almost every month. They told me that I should leave him in bed for a few days and see if he's better.....basically they do not have any explanation for this. They did increase his Carbidopa/Levoidopaado and think this should help. Only time will tell. He's coming home from rehab next week and now we start counting the days again. Is this what happens with your husband? My husband does great at acute rehab -- he works hard and comes home in pretty good shape but refuses to do any work with me or by himself. It is exhausting. Thanks again for your info. All the best.

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Replies to "@sillyblone Thank you so much for your reply. My husband is currently in acute rehab after..."

@graziellaz
Yes, It seems to be a pattern. My spouse has seizures which keeps him from doing some rehab.He has been using his walker more. He is able to walk freely at home. Following directions is not easy for him to understand. Since Parkininson's is a movement disorder most patients and or family members get frustrated for the fear of falling. Actually , my spouse fell on our driveway. He did not want to wait to get in the garage where the floor is flat. I think he forgets what he is able to do and what he cannot. He of course is in end stage Parkinsons. Limited things that he can or cannot do anymore has been hard for him. He tells me " I want to be normal again". I just try to keep him positive or suggest something like a movie or a puzzle, cards, etc. That does not always work. Keep a dairy of things that stick out to you and or/changes that concern you. Stay positive, which is exhausting and overwhelming at times. If you need a good cry..do so. Allow yourself to be whatever emotion you have and by all means take care of yourself..You matter too.🫂💞