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Anyone have hypoparathyroidism or non-working parathyroid glands?

Posted by ripley @ripley, Nov 19, 2024

I am currently hyper-parathyroid, which has caused my osteoporosis to get much worse. I had unsuccessful surgery last year, as the surgeon could only locate two parathyroid glands, both appearing normal. He removed one gland that was encased in scar tissue from a previous thyroid surgery. He repositioned the 2nd gland.

I recently had a more sensitive scan that found a 3rd parathyroid gland that is "highly suspicious" for an adenoma. However, my new surgeon has concerns about removing it. He said surgery could cause my remaining parathyroid gland to stop working, leaving me with no working parathyroid gland. He said that would be very bad and I could end up worse than I am now. I have an appt with a different surgeon for a 2nd opinion this week.

Looking to connect with anyone who is hypoparathyroid, or has no working parathyroid glands. How are you treating the condition and what is life like for you?

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

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riflemanz64 | @riflemanz64 | May 5 3:06pm
In reply to @my44 "@lonsy, here is another article that may be of interest to you: https://www.parathyroid.com/FHH.htm Also, if you..." + (show)
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@lonsy, here is another article that may be of interest to you: https://www.parathyroid.com/FHH.htm

Also, if you go to the top of the page and do two searches you will be able to pull up threads and read other Connect members' experiences. Just type in FHH, and then press Enter for one search. There are just a few threads, not many. For the second search, type in hyperparathyroidism, and press Enter. There's a wide array of threads on that subject.

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@my44
FHH is very rare and if no one in your family history has it I doubt you would. They told my wife to get tested for that sat a cost of $5k and we said no and they flew to Tampa Florida Norman Parathyroid hospital. They removed 3 of her parathyroid glands that were bad. It was not FHH! If you have a family history of it then maybe but if you never heard of it I’d say no.

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