@mdramsey48

Oh you've been through the wringer, mdramsey. I am so sorry.

Do you know, with ET you can be allergic to your own platelets? They are so misshapen that they can trigger our immune response. Have you tried taking an antihistamine to reduce your itching and congestion?

Well . . . if the breast cancer specialist is your only option, that's better than nothing.

But an oncologist/hematologist would be preferred. And an oncologists specializing in MPNs would be the gold standard.

My challenges pale in comparison to yours, but still I'll say that for a couple of years, life was scarcely worth living for me. I was exhausted and blinded by terrible headaches.

Once HU began to bring down my platelet count, the relief was immense.

I hope that you too will benefit from HU! To better days ahead!