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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 3 days ago | Replies (2316)Comment receiving replies
@tomrennie
He's had 5 rounds of abraxane & Gemzar & has been experiencing joint pain, fatigue and the worst part are his terrible mouth sores. He's in a lot of pain & has lost almost 20 pounds, These past few days, he sleeps all day & won't eat saying it's too difficult.
He's scheduled for Whipple 5/21 & I'm concerned because I don't think he's emotionally or physically ready for this.
We will see his surgeon tomorrow to reevaluate and ask more questions.
If anyone can suggest questions we should bring up, I'd appreciate the input.
Replies to "@tomrennie He's had 5 rounds of abraxane & Gemzar & has been experiencing joint pain, fatigue..."
@jimcaskowski Please let us know how the visit with the surgeon goes?
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@jimcaskowski https://www.mayoclinic.org/tests-procedures/chemotherapy/expert-answers/magic-mouthwash/faq-20058071
That link leads to something called "Magic Mouthwash" and it was the only thing that gave me any relief from bad mouth sores. It'll have to come from a compounding pharmacy. There's a good chance the Abraxane will give him increasingly bad neuropathy in his feet, lower legs and fingertips. Look up cold therapy booties and mittens that can be used before his next infusion to help prevent the neuropathy. I tolerated Folfirinox pretty well, but Gemcitabine/Abraxance was rough as a cob to tolerate in my case. Good luck.