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Orgovyx.......... not so great. Radiation.....almost pooping my pants!
Prostate Cancer | Last Active: 2 days ago | Replies (46)Comment receiving replies
I have been on Orgovyx for 4 months now and just completed my 6th of 38 sessions of radiation at 2.25 grey per session. I have noticed I am more lightheaded and have had some hot flashes but with all the things adt has done to me I could not say it is the radiation or combination. I have hypersensitivity in my pelvic area and I have not seen a change in my normal pain level. I was informed I would most likely have bowel issues from the radiation and most people have it go away after a period of time.
Replies to "I have been on Orgovyx for 4 months now and just completed my 6th of 38..."
@pamperme
I had almost the same number of radiation sessions you’re having. I had absolutely no side effects at all. The side effects you describe are quite similar to what ADT causes. ADT Can cause joint pain. Never had any bowel or urinary issues. The lower dosage per session seems to really reduce the side effects. People who have 20 sessions seem to have a lot more problems, they almost always reports cystitis.
I know that some people that had radiation at the same time that I did, did have fatigue after it, But I don’t know how many sessions they had or what their Specific situation was.
That pelvic hypersensitivity sounds like a radiation issue, Not really something reported with ADT.
@pamperme Four years ago I had short-term ADT along with 28 doses of radiation, with my rectum protected by SpaceOar. The only noticeable lingering radiation side-effect was softening, narrowing, and more "demanding" bowel movements. That never entirely went away, but it has been pretty tolerable.
@pamperme I completed 45 radiation sessions Feb 25. Side effects almost gone. Complete 6 mo of Orgovyx on April 18. Advised side effects would take 1-4 months to disappear. Still having hot flashes and other side effects. Make sure you have your biopsies tested with the new Decipher test. I went from an initial diagnosis of high risk prostate cancer to low risk.
Hang in there. Things will get better.
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@pamperme I too have the lightheadedness, and my hot flashes are still pretty intense. However, I seem to be tolerating them better, or maybe I'm just ignoring them. 🙂