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← Return to B12 deficiency mimicking MDS
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Blood Cancers & Disorders | Last Active: May 6 2:22pm | Replies (6)
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Hi yes she said some results are consistent to those in MDS. I’m 53 and just feel so sad. Iv had some loading b12 injections and these have cleared most of my symptoms. My haemoglobin has risen to 128 ( I’m having another blood test today as that was last weeks reading) and numbness and cold in my extremities is more or less gone. I feel normal after being so unwell. I just don’t know if it was true MDS would I feel such rapid improvement. I get the rest of the results next week and I just wanted to know if anyone else had been misdiagnosed. Thank you so much for your reply xx
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@chrissy2310
Hello, I recently was told from a genetic test from biopsy and after wbc and rbc lowered one month that it appears a 5% MDS problem! Oncologist told me just go live my life, it could be years. Of course , that disturb me. But then blood work went back to almost normal and another Oncologist told me I did not have MDS b/c my numbers would not rise back if so. I’m living a mystery about that.
Your post made me wonder if that was related just to a B12 deficiency. I have to give blood every 2 weeks b/c of hemochromatosis so maybe B12 was really the source of MDS diagnosis. My understanding to have MDS your numbers all will be low, white blood count, red blood count, hemoglobin etc. Hopefully all is well for you now! Wish you a healthy year. Thank you for post.