Arachnoiditis ( severe ) stage
Has anyone been treated at the Mayo clinic in Minnesota for Arachnoiditis ? They claim to treat this condition but when I reached out to them they just brushed me off with a form letter that I could not respond too. Far from the help they claim to offer.
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I was diagnosed with AA over a year ago. Checkout Dr Tennant research and treatment plans, http://www.arachnoiditishope.com. I have done almost everything he recommends. My primary care doc is good, but I also go to a pain dr, a neurologist, and a urologist. I had 3 level orthopedic fusion nearly 2 years ago and I ended up with L4 nerve damage causing drop foot, and now both legs feel weak, so my diagnoses is now headed toward cauda equina syndrome, which is not good. I take oxycodone, ketolorac, methylprednisolone, pregabalin, duloxatine, along with several otc supplements. I was thinking of going to a neurosurgeon next. I was also thinking of contacting cleveland clinic, johns hopkins or mayo as well. Good luck.